Request an INFANTILE SPASMS (IS) CARE PACKAGE
We hold a special place in our hearts for families in the Down syndrome community who have an Infantile Spasms (IS) diagnosis. Will was diagnosed at 8 months after being misdiagnosed for 2 months. It was a scary time for us and knowing we weren't alone helped us through that time.
So now we provide care packages and an online support chat for families in our community.
If your child is experiencing IS or you know someone else with a child going through it, please fill out the form below.
*Please note that this outreach is specific to families inside of the Down syndrome community.
